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WALKING IN MY SHOES
A monthly meeting for the parents or guardians of children with all types of disabilities/special needs to meet, greet and share experiences.
A Facilitator is present to guide discussions and provide links to resources. Meetings alternate monthly between guest speakers on topics identified to be of interest by participants and usually a presentation by a service provided followed by informal discussion and information sharing.
Members may also opt to receive regular updates on relevant information, services and workshops.
MEETINGS AND LOCATION
NEW CENTRAL LOCATION: Citizen Advocacy, 1Community Place, 312 Parkdale Ave, Ottawa, ON K1Y 4X5
Meetings are held the 3rd Tuesday of the month, September to June, 7:00-9:00 pm.
December 19, 2017
January 16, 2018
February 20, 2018
March 20, 2018
April 17, 2018
May 15, 2018
June 19 2018
PLEASE NOTE: WIMS parents’ group holds ONE meeting a month. The meetings will take place on every 3rd Tuesday of the month.
Tuesday, December 19 at 7pm – Informal Discussion and Information Sharing ~ Holiday Gathering and Resource Table
Tuesday, January 16 at 7pm – Social Roles and Employment for Individuals with Intellectual Disabilities
Keenan Weller and Allison Moores from LiveWorkPlay will present an information session to support caregivers in building loved ones’ social roles in the community and employment opportunities.
Tuesday, February 20 at 7pm – Information Sharing on Respite Services
Kim McLeod, AKA Granny K, an advocate for children with disabilities and their families, will share information on respite services for the first 30 mins. The rest of the evening will be information sharing and discussion.
Pre-registration is encouraged – please email email@example.com or call 613-761-9522.
To provide parents with:
- access to a group of parents who have similar concerns and feelings related to their child’s special needs
- information/resources from other parents, facilitator and guest speakers
- the opportunity to share in a supportive and non-judgmental setting
- the opportunity to develop a support network
- the opportunity to collectively advocate for services/funding
- the opportunity to plan parent/child/family group activities
- parents will feel less isolated
- parents will feel empowered to support their child’s needs
- parents will develop a network of support and resources
- parents will increase their knowledge of the tools and support available to advocate for service
- families with children with special needs will have the opportunity to plan and participate in family activities in the community.
Darlene Donnelly, WIMS Facilitator, has extensive experience working with children with special needs, including supporting their families. She has a deep knowledge of the available resources and services in the community.
Attendance at the meetings is free of charge. There is an optional $25 membership fee. Your membership helps to fund the program and allows Citizen Advocacy to demonstrate to funders that the program is needed and supported by the community. Members can also opt to receive regular community resource and workshop information emails. Please complete the form below.
The first WIMS meeting was held on October 20, 2009. That meeting and those that followed were all about getting to know each other and discovering the needs and goals for the group. It was decided that WIMS would be a parent-led group with Janet Robinson as the facilitator.
At first, WIMS was totally volunteer-driven and everything was free. In 2013, Robinson realized that to ensure WIMS’ continuity and long-term sustainability the support and commitment of an established agency was essential. Citizen Advocacy (CA) was approached to run WIMS as one of its programs.
Citizen Advocacy with guidance and support from Janet Robinson ran the program until June 2016. This was when Janet Robinson decided the time was right to retire. Citizen Advocacy wishes her well in her retirement and are proud to carry on her legacy by continuing to facilitate the group in accordance with its goals and objectives.
Families Matters Coop Inc – for families and their family members with developmental disabilities.
Citizen Advocacy of Ottawa – We are an inclusive community that welcomes, values and supports the diversity, participation and contribution of its citizens, including those who live with disabilities and their families.
REACH – Promoting Equality and Justice for People with Disabilities
Advocacy & Social Action (Disabilities) – Ottawa – seeks to influence legislation to benefit disabled people or to achieve specific social or political goals. They also intercede on behalf of individuals and/or groups to ensure they receive the benefits and services to which they are entitled and that their rights guaranteed by law are protected and enforced.
Parentbooks – offers a comprehensive selection of resources from planning a family to everyday parenting issues to special needs of all kinds.
The Max Keeping Fund for Kids – may provide financial assistance for your child.
The President’s Choice® Children’s Charity (PCCC) – dedicated to helping children who are physically or developmentally challenged.
Jennifer Ashleigh Foundation – assists children who are chronically or seriously ill, are 21 years of age or under and whose permanent residence is in Ontario.
Easter Seal Society – grants for incontinence supplies for children and youth.
Military Police Fund For Blind Children – a fund for children under 21 years who have a visual impairment or blindness. It is for all families not just those in the military.
Canadian Tire Foundation for Families – delivers support to children in financial need through a Canadian-wide network of local chapters.
Ceridian Cares – to improve the quality of life in our communities by providing financial assistance to individuals and families that need it most.
ConnectABILITY – dedicated to supporting people who have special needs, their families and support networks.
Inclusion – offers resources, training tools, articles and more on inclusion
Eparent.com – offers books, articles and support to families, caregivers, physicians and teachers
Our Differently Abled Adult Children Facebook Group – a forum where parents of adult children with developmental disabilities (including Autism) can share and discuss their experiences.
Costs range from $14 to $30 per hour; $30 to $250 per day, $150 – $519 for a weekend.
ACSD, Assistance for Children with Severe Disabilities – funded respite is available to families of people who qualify as developmentally disabled in Ontario
Special Services Worker Bank – information and links to respite services for children & adults.
OCAPDD Ottawa Carleton Association for Persons with Developmental Disabilities – respite services in a respite home
Association pour l’integration sociale d’Ottawa – respite in French
Association québécoise des troubles d’apprentissage Section Outaouais – respite in French for a child with ADHD – low cost
Blackburn Agency – residential and respite services for youth
Sonshine Families – respite weekends at Sonshine Cove all year & summer camp
Christian Horizon – day respite, in-home respite, out of home, summer program, therapeutic respite program.
Partners in Parenting – respite care in one of their foster homes
Greenland County Haven – overnight respite, summer & March break camps
TIPES – respite services are available after school and by appointment on evenings and weekends and offered to children and teens between the ages of 2-18
In a Pinch Childcare Services Ottawa – a nanny agency offers short-term babysitting with qualified baby sitters
Hiring someone yourself – good respite providers listen to the family and do what they say with the children, follow the routines. It is important to see in advance that the state of the house where the child will be is calm & uncluttered.
Facebook closed group – parents can post an add or find individuals who post their availability. As with all caregivers it is always important to check references and have the individual spent time with your child in your presence to see if they are competent and a good fit for your child and family.
A Developmental Services or Child & Youth or Social Service worker or student who has been in placement in a classroom or group home or home.
For DSW Developmental Service Worker students email your DSW job posting for a DSW student to Algonquin College Developmental Services Worker Program to Carl Toole and provide this information: location, hours, pay or volunteer and a description of the job.
Carleton University CU Hire – the website explains how to go about posting a job opportunity.
University of Ottawa – a free job posting service for the students at U of O.
EA (Education Assistant) who wants extra work – try the teachers’ website, or ask Special Ed teachers to check the site for you
Put an ad on Kijiji for someone with experience and/or education (DSW-Developmental Service Worker, CYW- Child & Youth Worker, SSW -Social Service Worker etc.), giving hours & pay –generally tremendous response, but not all suitable & qualified – but some parents have found amazing respite workers
Buddy Families – If families make friends with others with children of similar ages & similar needs, then families may be able to have their children stay over with each other and get a break that way.
Recreation/Social – while children participate in activities parents have a few hours to run errands etc.
City of Ottawa Special Needs programs – give children, youth and adults with special needs, the opportunity to participate in year round programs that provide recreation and social programming.
Mainstreet Community Services is a registered charity that valiantly attempts to address a critical need by developing and implementing comprehensive, research based programs for children who are challenged by a disability or exceptionality
Family Services à la famille Ottawa (FSFO) is dedicated to the health and well-being of the people of Ottawa. Our services are accessible, effective and our professional staff are talented and committed.
211 Ontario – Access to community, social, health and related government services in Ontario.
The Community Information Centre of Ottawa – provides information about a wide range of services in the Ottawa area (e.g. community services, health, social services, government services). They are perhaps best known for their famous ‘Blue Book’, which is a Directory of Ottawa Community Services.
Children’s Integration Support Services (CISS) – is a bilingual program which provides support services to licensed nursery schools, day care centres, school age and home child care programs that integrate children who have special needs between the ages of six weeks and ten years of age in the City of Ottawa.
Ottawa Children’s Treatment Centre – OCTC is a leader in providing specialized care for those with multiple physical, developmental, and associated behavioural needs, focusing on our Region’s children and youth.
Service Coordination – Service Coordination assists people in our community who have a developmental disability and/or autism. They help access the supports and services that are available.
Ottawa Special Equipment Exchange – a Facebook group where parents can sell/buy/give away equipment their child has outgrown.
Down Syndrome Association- National Capital Region – Learn about issues, activities and resources relevant to those with Down Syndrome in the Ottawa and surrounding area.
Autism Ontario Ottawa Chapter – provides information, support, resources and advocacy to advance the quality of life for persons affected by ASDs within our community. The Ottawa Chapter has been in existence for over 30 years and was one of the first chapters.
Crossroads Children’s Centre – an accredited mental health agency providing specialized services to children under the age of 12 with severe emotional and behavioral issues.
First Words Preschool Speech and Language Program of Ottawa | Services in Child Communication – provides information on how babies and young children learn to talk,tips on what parents can do to help their children to speak, services where parents and preschool children can get the help they need.
Children at Risk, Ottawa – is a community-support charity for Autistic children and their families. Established in 1979, Children at Risk strives to complement existing government-funded supports – filling in the gaps with Social Skill groups, Sibling Support Groups, educational workshops and information seminars. All of our services are financed by donations and fundraising activities, which require volunteers throughout the year.
T.I.P.E.S. Thinking in Pictures Educational Services – a non-profit educational and therapeutic service that provides support to children aged 2-18 years who have PDD (eg. Autism) and related or additional exceptionalities.
Emerging Minds – a treatment centre for children and youth on the autism spectrums.
Building Blocks – a program based on behavioural intervention to provide families with direct “hands on” training and programming for their children in the home environment.
Quick Start – early intervention for Autism
Autism Road Map – a guide for navigating the system if you suspect your child has autism
Autism Advocacy Ottawa – making Sense of Autism support and services in the National Capital Region
Spectrum Intervention Group – use evidence-based procedures to help learners diagnosed with an autism spectrum or related disorders achieve meaningful gains in their home, school, and community.
Ontario Special Needs Roadmap – provides useful information to help navigate the education system in Ontario for all special needs children.
Edu-Advocates – specializes in facilitating special education needs. Our goal is to help individuals meet their full educational potential, by providing advocacy and consultation to families, students, teachers and school boards.
No Child Without Program – a charitable program that offers all elementary school aged children with medical conditions or allergies, free MedicAlert protection regardless of their financial resources.
Total Communication Environment (TCE) – services include Community Residences, Community Short-Term Respite Services, Day Supports/Community Support Services, Long Term Care Outreach
Ottawa Carleton Lifeskills Inc. – a non-profit agency with a mission to serve developmentally delayed adults with residential and day programs.
Lifetime Networks – a core program of Citizen Advocacy and exists to facilitate the establishment of, and ensure the continuance of, a loving and caring Personal Network in the lives of persons with a disability.
Partners for Planning – helps you navigate each step and life stage, empowering you with all the right tools and inspiration along the way.
Y’s Owl Maclure Co-operative Centre – creates day time opportunities including employment for people with disAbilities.
LiveWorkPlay – a charitable organization that supports a good life for people with intellectual disabilities through citizenship, self-advocacy, and community partnerships. LiveWorkPlay believes in an individualized and non-program approach that emphasizes personal planning and support networks.
TAMIR – offers a variety of services in response to community need.
Christian Horizons – is committed to providing supports that are person-centered.
Seniors on Site – SOS – in-home care for families and seniors in Ottawa: Child care, home care and elder care
Inapinch.ca – backup child care and babysitting services.
Access2 Entertainment – free admission for support persons accompanying persons with disabilities to movie theatres across Canada.
Fun and Function – Specialized toys: sensory toys, educational games, weighted blankets, etc
Special Finds – Specialized toys: sensory toys, educational games, weighted blankets, etc
Zach’s List – a place where families with special needs children can trade equipment and share advice and experience regarding equipment.
STRIDE Wheelchairs Plus Recycling Depot – used equipment for sale or rental.
Yoga therapy – for children with special needs.
Lotus Centre – is a not-for-profit organization which was founded to meet a community need for specialized music education.
One More Thing (OMT) – an Ottawa-based Facebook group for parents who are caregivers of children with special needs.
City of Ottawa Special Needs programs – give children, youth and adults with special needs, the opportunity to participate in year round programs that provide recreation and social programming.
Making Waves Ottawa – provides affordable and accessible one-on-one swimming instruction to children with special needs
Capital City Condors – an ice hockey team for youth who have been deemed ineligible to play on any other hockey team in the City of Ottawa due to a disability. Players are ages 6 and up, of all ability levels.
Canadian Association for Disabled Skiing – instruction provided for all ages including in sit ski equipment for those whose mobility is very limited.
Happy Trails Recreation Program – provides a personalized riding program for children with special needs.
Special Olympics Ontario – Ottawa – provides year-round sports training and competition opportunities for individuals with an intellectual disability.
TROtt – provides therapeutic riding programming for children and adults.
Ottawa Parents of Children with Apraxia (OPCA) – a parent support group organized to support families dealing with childhood apraxia of speech (CAS) and raise awareness of the speech disorder in the community.
Dandelion Dance Company – offers life changing programs that bring girls of all backgrounds and abilities together to use their “lived” experience in the collective creation of dance works.
Gloucester Association for Children with Special Needs (GACSN) – dedicated to providing Special Needs children with a fun Saturday afternoon of swimming, crafts, and meeting friends.
Propeller Dance – dance programming to people with and without disability.
The Canadian Association of Family Resource Programs (FRP) – promotes the well-being of families by providing national leadership, consultation and resources to those who care for children and support families
The Fetal Alcohol Spectrum Disorder Group of Ottawa – parents and professionals caring for persons of all ages affected by alcohol before birth.
City of Ottawa Recreation – all recreation programs offered within the City’s Parks and Recreation branch are
Epilepsy Ottawa Carleton – a non-profit organization that strives to provide information and support to those living with or affected by seizure disorders.
Ottawa Parents of Special Needs – a Facebook group
Being part of the Walking in My Shoes parent group (WIMS) has opened windows for the MacDougall family. Before their involvement in WIMS they felt that they were trying many doors and paths that were blocked in their quest to receive a correct diagnosis for their son, Spencer, and to find the right services to help him have the best life possible.
Christina first heard about WIMS from a neighbour who had attended the group and found some great services that were making a difference for her son. This was back in 2009, just after the WIMS parent group was founded. Christina asked to come along with her friend to the next meeting and that marked the beginning of an eight-year commitment to the group.
At first her husband, Stephen, stayed home to look after their son, but he heard from Christina about all she had learned from WIMS – the strategies and services that could help. He also listened as Christina shared the experiences of parents who were further along the path and how she was able to share their family’s experiences with the parents of younger children. Eventually, Stephen could come along to the meetings to hear for himself and to share his perspective as a father. Both describe how attending together was very beneficial for their son, as they both heard the information and knowledge shared and were able, as a couple, to present a united front to help Spencer.
Christina says, “WIMS gave us hope, we could share the joys and the conflicts involved in bringing up our son. We could see a path forward. For us it is really important to participate in the group, to share our experiences, and to learn from others. We hope that other parents will benefit as much as we have.”
The MacDougall Family
“WIMS was a foreign concept to me when I first came. I was not sure of what to expect from a group of parents and caregivers providing support to one another. After all, if you can barely keep your own head above water how would it help to submerge yourself in other people’s problems? I was also afraid of talking and making the problems real.
I went to my first meeting thinking it would be my last. I remember opening my mouth to speak and feeling overwhelmed with grief as we were asked to tell our names and our children’s (child’s) diagnosis… WIMS has helped me to become a better parent and advocate for my children. I have learned from other parents and speakers how to navigate a system which can be overwhelming. It has helped to lay a foundation for me to continue to build on. The parents have turned out to be my safe harbour in the storm.”
CONTACT US INCLUDING FEEDBACK ON ACCESSIBILITY/COMMUNIQUEZ AVEC NOUS INCLUANT VOTRE OPINION SUR L'ACCESSIBILITÉ
Toll Free/Sans Frais: 1-866-222-2138
312 av. Parkdale Ave.,
Ottawa, ON, K1Y 4X5
Charitable Registration Number/Numéro d’enregistrement d’organisme de bienfaisance
13036 2817 RR0001